Tuesday, 1 July 2014

Changing Diagnosis



This is the first blog for those reading on my blogger site regarding my mental illnesses. Over the coming weeks I will add more to this, I will probably publish some of my older posts from www.malensteptoe.com as well

It’s been a while since I last wrote about anything to do with my personal experiences with mental illness. Mainly I haven’t written anything or I have been writing about other stuff. I don’t know why I haven’t been writing about my own experiences that much, I suppose for a bit I was feeling quite a bit more down than I had been, I had been unwell recently and over the last few weeks I have felt more driven to write about other topics, which I have felt more pressing to write about. But none the less, I have finally got around to writing about what’s been going on since May 6th when I wrote a blog I titled – My Brain is a bastard and I hope I slip and it falls out through my nose.

Things have been pretty up and down since I wrote that blog. I have seen some of my lowest lows and some of my highest highs. On that note, for a long time I have had a diagnosis of Depression, likely having suffered from it since I was quite a young age. However, just a few weeks ago this diagnosis was withdrawn and I now have a diagnosis of Bipolar Disorder.

Bipolar Disorder isn’t something I completely understand, though I have a better understanding of it since I was diagnosed as I have spent a fair amount of time researching it. Bipolar Disorder shares some similarities with Depression as Depression is an aspect of Bipolar Disorder. Unlike with Depression where a person suffers the symptoms of Depression and eventually returns to period of typical mood without the symptoms of Depression, a person with Bipolar Disorder there is a third aspect to the illness which is mania or hyper-mania depending on the severity. This is where I find I get a little lost because there are aspects of hyper-mania which can be symptoms of Depression. In my experiences part of my hyper-mania is insomnia, which can occur in Depression, the difference seems to be the mood and activities during this time. During my periods of insomnia I may get an hour or 2 of sleep every off day or so, the rest of the time I am active, wide awake, it is as if I have had a full night’s sleep. Where in actual fact I might have been awake for 24-30 hours before I got 2 hours sleep, then repeat and this can continue to repeat for a week, 10 days or more. 30 hours seems to be the maximum length of time for me to be awake without any sleep, however I had my first experience doing so recently.

About 10 days ago I was coming to the conclusion of a 67 hour period without any sleep. Now, this is seriously not something I recommend anyone try to do on purpose. If I could have I would have gone to sleep quite happily however it was not to be. After about 35 hours I started to feel quite sick and this feeling continued to get worse over the following hours. After about 65 hours of being awake the skin on my face started to feel like it was slipping off. During the time I was awake I was completely alert, coherent and active. I went to work and did my normal shift, having been awake for about 40 hours at the time. I was as productive as any other day I worked, I didn’t feel tired as in I was going to fall asleep, however I was extremely frustrated because I couldn’t sleep and I knew that I needed to, despite not really being tired. In the end I saw a doctor at the local clinic who told me to take a double dose of my Oxazepam. For those unaware of what Oxazepam is it belongs to a group of drugs called benzodiazepines, used for short term treatment of Anxiety and Depression and to assist in sleep. I had already tried taking 30mg of this the night before and it had no effect. Taking 60mg however did help and I ended up getting about 6 hours of day that night. From there I fell back into my standard insomnia routine of 24-30 hours awake and a few hours of sleep. This lasted for about another 4 or 5 days. Then I slept all bar a few hours a day for a couple of days. Now I am just hoping to get back into a normal sleep routine for a while.

Other than sleep being an issue for me, both in depressive stages and also in mania/hyper-mania stages, during mania/hyper-mania I get incredibly irritable and easily frustrated, I have thoughts, so many thoughts, constant thoughts of absolute nothingness, sometimes I am barely able to start one thought before I am on to another and they just don’t fucking stop. It is like a constant cyclone of thoughts. Actually that kinda works well, think about the cyclone picking up house and as it does tearing pieces of it. Now that’s gone on for a bit there is pieces, some large, some, going a couple hundred kilometres an hour, round and round. Each one of those bits of the house is part of a thought. As briefly as you see a piece of the house is like the length of time you actually hold on to the thought and then there is the next one, the next and so on and so forth. It is fucking horrible, frustrating and exhausting, yet at the same time there is an element of exhilaration as the thoughts fly by there is this overwhelming sense of possibility, of this urgency to do it all and to do it all right fucking now. It is an extremely difficult pattern of thought, or lack of a pattern, to grasp. Sometimes I remember enough of a thought that had some validity to it, that afterwards once I had calmed down, I will think about it some more, think it through and it might be an idea for something to write about, a book or some invention or new way of doing or thinking about something. It’s odd, writing that last sentence I realised that I am not thinking of absolute nothingness, it is just that the thoughts are so incomplete, so random, so fractured that I can’t make sense of them and when I say random, think channel surfing with thousands of channels, all showing something completely different, history, modern, animals, robots, scientific, children’s entertainment, you name it my mind has thrown at least half a thought at me about it.
So that is pretty much what has been happening of late. While I am sleeping better at the moment, I would probably say that I am still somewhat hype-manic in that I am doing a lot more than normal, my mind is still racing with thoughts and I am finding them hard to nail down and my mood is much more heightened than normal. As my psychiatrist suggested though, while I am in this state “enjoy it”. As I don’t really go too far into mania where I do things which are risky or dangerous etc. when I am able to have some ability to focus my thoughts I do get lots done and I enjoy it. In particular I enjoy the amount of writing I get done, normally I would also get a lot of cleaning done but my ankle has been rather sore for the last week, even more so the last day or 2, as I found out a few hours ago this is because I had sprained my ankle, had done nothing about it for a week and today it was quite swollen. So, I am trying very much to behave myself and not going doing heaps of cleaning etc. Though, just thinking about it, maybe the reason I didn’t feel the pain as much and didn’t do anything about it is because of this hyper-mania, either that or its cause I’m a twit…yeah lets go with that.

Cheers for reading, please comment. I want some comments.

Blogging - Getting the Word Out

I have been writing my blog for well over a couple of years. Initially, I wrote using Wordpress, however as time passed I found Wordpress wasn't really for me. My main problem with Wordpress is that going beyond basic themes and getting a domain name etc was extremely high, especially when you consider you can design your own site, get hosting and a domain name for far less than Wordpress offers through Wix and there are probably other sites too. Personally, I like Wix and have now moved all three of my sites over to Wix.

Anyhow, my blog is now with Wix and while there are a few minor things that bug me or more so are probably things I would like Wix to have/allow, in general it is really good for what I need. There is one thing however that it doesn't have and is unlikely to have in the future, which has an impact on how many people read the blog and visit the site. While I do have a reasonable number of people visiting the site, with new visitors most months, along with the regular return visitors (I use google analytics), I would really like to see my site and blog reach a wider audience.

For the most part I generally blog about Mental Health, my personal experiences with Mental Illness along with random blogs about other stuff. One of the other reasons I liked the idea of moving my blog to my own site etc was that there wasn't as many rules and conditions, predominately those referring to the kind of language used. I dont swear extensively but I do swear a bit, there really isn't much way around it for me. Mental Illness sucks and it sucks more than you can really appreciate if you do not suffer from it and sometimes the only word that expresses exactly what you are trying to convey is an expletive.

My blog is available on it's own site, along with other stuff like;
  • The draft of what has been completed for my book "A Mind Not My Own". This book is regarding my struggles and experiences with Mental Illness from around the time I started being treated for OCD going forward. I haven't finished it yet, its a work in progress, but as I complete parts or do re-writes I upload them to my site for people to check out.
    There is a TED Talks Video which I highly recommend that anyone who has experienced depression, knows someone who has depression or wants to understand depression, watch the video. After years of seeing mental health professionals not once had depression been so clearly explained.
  • Some information about who I am. I think if your going to read my blogs, books etc then you should know who I am.
  • There is also information about and links to The Steptoe Lodge Alliance. This is a site I am working on which at it's core is a site dedicated to promoting the creative works of those affected by Mental Illness sufferers, friends, family and carers.
 I will be making some of the posts available on this blogger site firstly so you all don't miss out on all the content and secondly so that my blog reaches people who have not heard of it.